This site is dedicated to saving Chloe's life
and the lives of other little kids suffering from
Vanishing White Matter disease, by raising
awareness and much needed funds to Find A Cure.

Vanishing White Matter Disease (VWM) is an extremely rare, genetic, degenerative, terminal brain disease that affects mostly children. This disease is devastating, with most patients diagnosed between the ages of 2 and 6 years old. In a very short period of time, it causes the inability to walk, talk and eat as well as blindness, deafness, loss of motor skills, intellectual disability, spasticity, seizures, and coma and is followed by death often before reaching teenage years. A small bump to the head, a temperature, a cold or even a fright could end Chloe’s life. There are only 7 known cases in Australia and around 172 living worldwide. There is currently no treatment or cure available.

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