This site is dedicated to saving Chloe's life
and the lives of other little kids suffering from
Vanishing White Matter disease, by raising
awareness and much needed funds to Find A Cure.
Vanishing White Matter Disease (VWM) is an extremely rare, genetic, degenerative, terminal brain disease that affects mostly children. This disease is devastating, with most patients diagnosed between the ages of 2 and 6 years old. In a very short period of time, it causes the inability to walk, talk and eat as well as blindness, deafness, loss of motor skills, intellectual disability, spasticity, seizures, and coma and is followed by death often before reaching teenage years. A small bump to the head, a temperature, a cold or even a fright could end Chloe’s life. There are only 7 known cases in Australia and around 172 living worldwide. There is currently no treatment or cure available.
Your donation will help save a little girl's life.
Chloe is a gorgeous 7 year old girl, suffering with Vanishing White Matter Disease. Without a cure, Chloe will experience a lot of pain and suffering, lose her ability to see, hear, eat, experience intellectual disability, spasticity and die...
usually before reaching her teenage years.
You can make a difference.
Doctors are working on a cure, with promising research taking place
however funding is urgently required to speed up this process.
For further information on our fundraising milestones and what the funds will be used to purchase please click here.
Help us fund the cure in time to save Chloe and other children like her.
Authority to fundraise: CFN/23384 | Certificate of Incorporation: INC1400635
Australian Registered Charity: ABN 59276626144 | All donations over $2.00 are Tax deductible