If I have one recommendation for anyone whose child has just been diagnosed with VWM,
it is to join the face book page: VWM/CACH Family Forum It has the best up to date information
and you are able to talk with other VWM families around the world.
Australian Leukodystrophy Support GroupALDS Website..
United Leukodystrophy FoundationFoundation Website..
European Leukodystrophies AssociationELA Website..